Skip to main content

Tis' the Season, Not just a holiday party!



Thank you Hemophilia Foundation of Northern California for another fun filled event. I was blessed with the opportunity to hang out with some incredible people at HFNC's 2015 Holiday Party and am still aglow from all the love and support I received. So much has changed in the last year and it all started with the same holiday party one year ago. It's amazing to believe that last year at this same time I was walking into that same building with the feeling of fear and loneliness. . . .This year I walked into that same room with excitement and hope for the future.




Last year when I attended one of my first local chapter events . . . The HFNC's 2014 Holiday party, I was a bit intimidated at first. . .But I was immediately embraced by the community with open arms and soon found out how important this community would be. . . to me and my family. It was there that I met a very incredible lady, that wouldn't take no for an answer, and encouraged us to go to our first Family Camp in January 2015. . . Which anyone who knows us, or has read An Unexpected Haven knows. . . changed our lives.



The feeling I have after going to events like these are indescribable. The love, the bonds and support I get while talking to other bleeder families brings a sense of calm over me, that I don't ordinarily feel. They understand your fears, embrace your nuances and place no judgement. I'm so grateful to have these events and to be surrounded by such inspiring people empowers me like I never could've imagined.

Last year, I wouldn't leave Scarlett's side, nor would she leave mine. This year, she was off at the craft table before we could even say hello and was running around with the other kids for the duration of the day. The children were entertained with endless Holiday Crafts, while I got to catch up with old friends and also make some new ones as well. Santa came and handed out presents to all the children,   we ate yummy treats and we got to honor some very important visionaries of the bleeder community. . . a truly spectacular day.






Written by,
Kari Peepe
©KariPeepe/atouchofscarlett.blogspot.com
http://atouchofscarlett.blogspot.com

pspdaware@gmail.com



Comments

Popular posts from this blog

2020, you suck! Her introduction into womanhood wasn't supposed to look like this......

2020, what a year. It seems appropriate that Halloween weekend during the pandemic would end up being when my little girl become a woman.  Friday October 30, 2020 It started at 12:35 pm on a Friday. Halloween was the next day and my son's school was having a safe-distance trick-or-treating event that we'd been anxiously awaiting to attend. This would be the first time either of my kids were getting invited to come onto one of their campus' since the school year started. So, we were dressed in our Halloween outfits and ready for a fun filled day.  Keeping on her brave face as we rush out the door. We were rushing out the door, late as usual. Since the pandemic... we've definitely taken advantage of having a minimal schedule and being on time hasn't become our strong suit. Scarlett came running up to me whispering “ Mommy Mommy, when I wiped there was blood. ” I scurried her back to the bathroom to the assess the situation and assured her she’d be oK. " This was

PSPD 101- What is Platelet Storage Pool Disorder

Hello, My name is Kari Peepe and in 2011 my daughter and I were diagnosed with a platelet storage pool disorder. After several years of researching and going online to find men sharing their stories about hemophilia, but never women talking about platelet disorders. . . I decided to start my own personal blog, A touch of Scarlett. This has become a place where I share stories about our life with a rare bleeding disorder, spread awareness and hopefully empower others to help me in the fight for a better treatment plan.  1- What is PSPD? PSPD is as autosomal inherited disorder (like Cystic Fibrosis) PSPD is a rare autosomal inherited bleeding disorder. Unlike hemophilia which is an x linked recessive bleeding disorder. Platelet disorders fall into 2 categories Qualitative (abnormal function and/or structure of the platelet) vs. Quantitative (from having too few or too many).We fall under the qualitative category. Platelets are small parts of the blood cells that help wo

Give Kids the World Village. . .Go to your happy place-Scarlet's Make-A-Wish PART 5

When people say . . . "To go to your happy place". . .  I now have somewhere to go.   My name is Kari Peepe and I am the lucky parent of Miss Scarlett Peepe. . . We just got back from Give Kids the World in Florida and we are literally beaming and my jaw hurts from smiling so much from watching my daughter in a state of such pure joy for one whole week.   I want to cherish the feeling we had when we returned from Scarlett's Make-A-Wish trip . . .forever!  Scarlett was diagnosed when she was 3 years old with Platelet Storage Pool Disorder- a rare bleeding disorder which has left her with a life time of blood work, medications, restrictions and fears of life threatening situations.   As soon as Scarlett found out about Make-A-Wish, she was ecstatic but nothing could’ve prepared her or us for the experience that was about to take place and the joy it would leave in our hearts and our minds forever.   Prior to meeting Scarlett's Make-A-Wish team I had never even he