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PSPD 101- What is Platelet Storage Pool Disorder

Hello, My name is Kari Peepe and in 2011 my daughter and I were diagnosed with a platelet storage pool disorder. After several years of researching and going online to find men sharing their stories about hemophilia, but never women talking about platelet disorders. . . I decided to start my own personal blog, A touch of Scarlett. This has become a place where I share stories about our life with a rare bleeding disorder, spread awareness and hopefully empower others to help me in the fight for a better treatment plan.  1- What is PSPD? PSPD is as autosomal inherited disorder (like Cystic Fibrosis) PSPD is a rare autosomal inherited bleeding disorder. Unlike hemophilia which is an x linked recessive bleeding disorder. Platelet disorders fall into 2 categories Qualitative (abnormal function and/or structure of the platelet) vs. Quantitative (from having too few or too many).We fall under the qualitative category. Platelets are small parts of the blood cells that hel...
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2020, you suck! Her introduction into womanhood wasn't supposed to look like this......

2020, what a year. It seems appropriate that Halloween weekend during the pandemic would end up being when my little girl become a woman.  Friday October 30, 2020 It started at 12:35 pm on a Friday. Halloween was the next day and my son's school was having a safe-distance trick-or-treating event that we'd been anxiously awaiting to attend. This would be the first time either of my kids were getting invited to come onto one of their campus' since the school year started. So, we were dressed in our Halloween outfits and ready for a fun filled day.  Keeping on her brave face as we rush out the door. We were rushing out the door, late as usual. Since the pandemic... we've definitely taken advantage of having a minimal schedule and being on time hasn't become our strong suit. Scarlett came running up to me whispering “ Mommy Mommy, when I wiped there was blood. ” I scurried her back to the bathroom to the assess the situation and assured her she’d be oK. " This was ...
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I'm sorry you shouldn't have more kids. . .

My husband and I had always said we wanted 2 kids at the least, ideally three.   But that's no longer in the cards for us......After the birth of my second child the Dr's said "I'M SORRY, YOU SHOULD'NT HAVE ANYMORE KIDS!" I would still choose to describe my first delivery as " a piece of cake" .   I hadn't been diagnosed with Platelet Storage Pool Deficiency yet, so I went into delivey very confident everything was going to be fine.  My family and I had warned the Dr's that we thought I had a bleeding disorder, but beyond that no precautions were put into place. So, when we got to the hospital at @7:30 am and delivered the most precious baby girl by 11:30am with no drugs, what seemed like a few pushes, and (what I was calling) normal blood loss, I was very confident I could do this again.....and again......and again!  Now don't get me wrong, my first delivery was scary......it just wasn't as obvious at the time.  My daughte...
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