A Touch of Scarlett, our journey with a rare bleeding disorder

As I sit down to write this I am again riddled with guilt . . . As I walked in the door this evening after a long day I was met at the door with a crying Scarlett sitting on the couch.  She had just bumped her chin on the stool and already had a familiar bump forming on her lower chin.  As soon as she saw me, she got that look in her eyes. . That look that screamed please don't give me my nose spray/medicine.   I calmly walked over assuring her that I would let her put ice on it for a few minutes first to see what happened. . . Within a few minutes the bruise was getting bigger and darker and starting to swell.  I looked at my husband and looked at my daughter and just wanted to break down.  I HATE THAT IT'S MY CALL. . that I have to be the bad guy, the one that has to convince her its worth it (half the time not even feeling secure with the fact that I'm giving it to her myself).  My husband never feels confident with making the final call and has always ...

When people say . . . "To go to your happy place". . .  I now have somewhere to go.   My name is Kari Peepe and I am the lucky parent of Miss Scarlett Peepe. . . We just got back from Give Kids the World in Florida and we are literally beaming and my jaw hurts from smiling so much from watching my daughter in a state of such pure joy for one whole week.   I want to cherish the feeling we had when we returned from Scarlett's Make-A-Wish trip . . .forever!  Scarlett was diagnosed when she was 3 years old with Platelet Storage Pool Disorder- a rare bleeding disorder which has left her with a life time of blood work, medications, restrictions and fears of life threatening situations.   As soon as Scarlett found out about Make-A-Wish, she was ecstatic but nothing could’ve prepared her or us for the experience that was about to take place and the joy it would leave in our hearts and our minds forever.   Prior to meeting Scarlett's Make-A-Wish team I had ne...

Dear Make-A-Wish and Give Kids the World Village, My name is Kari Peepe and I am the lucky parent of Miss Scarlett Peepe. . . We just got back from Florida yesterday and we are literally beaming and my jaw hurts from smiling so much from watching my daughter in a state of such pure joy for one whole week. Scarlett Peepe was diagnosed when she was 3 years old with Platelet Storage Pool Disorder, a rare bleeding disorder which has left her with a life time of blood work, medications, restrictions and fears of life threatening situations.   Scarlett’s wish was to go to Disney World to see the parade, meet the princesses, and see the animals at Animal Kingdom.  As soon as Scarlett found out about Make-A-Wish, she was ecstatic but nothing could’ve prepared her or us for the experience that was about to take place and the joy it would leave in our hearts and our minds forever. The smile on her face that appeared on her wish reveal day has truly remained there ever since. ...