A Touch of Scarlett, our journey with a rare bleeding disorder

Each year the Hemophilia Foundation of Northern California hosts a Crab Feed for friends and family of the bleeding disorder community. Scarlett and I attended our first HFNC Crab Feed!!! IT WAS A BLAST. Craft corner for the kids.  Upon arrival we had no idea what to expect and were pleasantly surprised to find a craft area set up for the children as soon as we walked into the door. The second room we walked in was where we checked in and where the silent auction was taking place.The silent auction area had tables lined with items to please all personalities. Baskets filled with tickets to local sporting events, massage packages, movie nights, items for kids, clothes, jewelry. . . and even vacation getaways. There was also a section set up for the kids to participate too. For a small amount of money we could purchase tickets for the kids to put in buckets in front of their own silent auction items (board games, lego sets, etc) and at the end of the night they all go...

Recently I was blessed with the opportunity to participate in a Womens Retreat in Santa Cruz, California.  The Female Factor group partnered up with the Women's Bleeding Disorders Coalition (WBDC) to co-host an evening of  food, laughter,   education and ended the evening with some gentle yoga!  Amazing group of women I headed off for the retreat early on a Friday morning. It was cold and rainy and no signs of sunshine were on the horizon, but I left my house eager for what the day had to hold and was ready for some girl time. I live about 2 hours from Santa Cruz and was picking up the president of WBDC on the way, whom was flying in from Texas for the event. . .  Selfie by the Board Walk We were both eager to get to Santa Cruz and see what was on the agenda for the day. We knew we would be meeting up with one of the co-founders of the Female Factor group whom had an amazing lunch prepared for us once we got to her house. We cau...

Since Scarlett and I were diagnosed with the rare bleeding disorder-Platelet Storage Pool Defect, I've made it my mission to share our story and spread awareness. Not only have I been working on my blog, but I've also been published on other web sites, foundations, etc. . . Here is a list to those links: I was recently interviewed for a piece in HFA Dateline 2015 Summer on why I became involved with the Hemophilia Federation of America An interview I did with HFA. . .  http://hemophiliafed.org/dateline/HFA_Dateline_2015_Q2_Summer/#p=26 I'm so honored to be a part of HFA 's INFUSING LOVE team. Here are the pieces I've written for them so far. . .                                                                                http://www.hemophiliafed.org/news-stories/2014/10/infus...