A Touch of Scarlett, our journey with a rare bleeding disorder

So yesterday at work one of the preschoolers head butted me causing an enormous nose bleed that lasted 45 minutes. . . . 15 of which were after I took my medicine to help with the clotting.  I tried to get hold of my hematologist, but was unable to reach anyone which left me feeling frustrated and scared if this were to be a more serious situation than a nose bleed.  I've taken the stimate spray only once before since being diagnosed with Platelet Storage Pool Disorder and the side effects were horrible- nauseated, fatigued, dizzy, headache, and an amazing feel of dehydration that couldn't be helped because I had to cut my liquid intake in half for 24 hours after taking the meds!! I always feel bad when I have to give Scarlett her nose spray and now that feeling is enhanced even more. I often find myself so worried about keeping Scarlett safe and forget I have to worry about myself! This was a great reminder for me to remember I've got a life threatening bleeding condition...

My husband and I had always said we wanted 2 kids at the least, ideally three.   But that's no longer in the cards for us......After the birth of my second child the Dr's said "I'M SORRY, YOU SHOULD'NT HAVE ANYMORE KIDS!" I would still choose to describe my first delivery as " a piece of cake" .   I hadn't been diagnosed with Platelet Storage Pool Deficiency yet, so I went into delivey very confident everything was going to be fine.  My family and I had warned the Dr's that we thought I had a bleeding disorder, but beyond that no precautions were put into place. So, when we got to the hospital at @7:30 am and delivered the most precious baby girl by 11:30am with no drugs, what seemed like a few pushes, and (what I was calling) normal blood loss, I was very confident I could do this again.....and again......and again!  Now don't get me wrong, my first delivery was scary......it just wasn't as obvious at the time.  My daughte...