Originally posted on October 15, 2014 on HFA 's website http://www.hemophiliafed.org/news-stories/2014/10/infusing-love-taking-care-of-the-patient-the-caregiver/ Infusing Love: Taking Care of the Patient & the Caregiver Categories: Adult Women , Families , HFA News , Mom's Blog: Infusing Love October 15, 2014 I don’t think I’ll ever forget the day I got the phone call — the one I had been dreading since my daughter was diagnosed with Platelet Storage Pool Disorder (PSPD) . It was 10:30 AM on a Thursday. I was singing to the preschoolers where I work when my colleague brought me the phone. She had that look on her face–you know the one — I’m so sorry! It was Scarlett’s school. I knew she must be hurt. I immediately stopped what I was doing and reluctantly took the phone, frightened of what I was going to hear on the other end. It was the principal. “Kari? Scarlett hit her head. She ran into a pole in the hallway.” She went on to explain that she hadn
We are here to share our story and spread awareness of this rare bleeding disorder called PLATELET STORAGE POOL DISORDER . . . . .