A Touch of Scarlett, our journey with a rare bleeding disorder

It's official. . . We got the call saying that Scarlett's Make a Wish to go to Disneyworld got granted and we will be staying at the GIVE KIDS THE WORLD VILLAGE .  We are flying out on Friday March 28 and will be returning the following Thursday.  Upon looking at their website I was brought to tears reading about all the amazing adventures that are in store for the family when we are in Orlando.  Scarlett's reminded of her bleeding disorder daily and is always feeling like it's affecting her life . . I hope this magical vacation gives her a time where she can just be a kid and not have to worry about anything else. We are so excited but are going to try and keep it a secret from Scarlett until her Wish Reveal party in a few weeks. . . If you would like to see where we will be staying and read more about this amazing destination just for children with life threatening diseases . . Please visit Written by, Kari Peepe ©KariPeepe/atouchofscarlett.blogspot.co...

While talking to other bleeding disorder parents online one day, one of them mentioned that she had known someone with hemophilia that had her child's wish granted through the amazing Make a Wish Foundation.  After asking relatives and friends their opinions of whether or not this was something I should look into. . . I decided there was no harm in just filling out the form on line and to be honest with the on going controversy over whether bleeding disorders are life threatening left me feeling pretty skeptical.  Within 2 weeks, the Make a Wish Greater Bay Area office got hold of me to have a phone interview.  During this interview I gave them a lot of contact info about my husband and I as well as some info about Scarlett's bleeding disorder.  They told me the next step would be getting hold of her hematologist and getting approved that Scarlett has a life threatening illness.  After I heard from them to he honest I didn't think we would hear back from them....