A Touch of Scarlett, our journey with a rare bleeding disorder

Each year the Hemophilia Foundation of Northern California hosts a Crab Feed for friends and family of the bleeding disorder community. Scarlett and I attended our first HFNC Crab Feed!!! IT WAS A BLAST. Craft corner for the kids.  Upon arrival we had no idea what to expect and were pleasantly surprised to find a craft area set up for the children as soon as we walked into the door. The second room we walked in was where we checked in and where the silent auction was taking place.The silent auction area had tables lined with items to please all personalities. Baskets filled with tickets to local sporting events, massage packages, movie nights, items for kids, clothes, jewelry. . . and even vacation getaways. There was also a section set up for the kids to participate too. For a small amount of money we could purchase tickets for the kids to put in buckets in front of their own silent auction items (board games, lego sets, etc) and at the end of the night they all go...

I started my blog almost 1 year ago and I would be lying if I say it hasn't changed my life.  The amount of people I've connected with and been able to share my stories with has given me a sense of belonging and purpose for the first time ever. I take pride in saying that I've opened the eyes of thousands of people to the rarely diagnosed Platelet Storage Pool Disorder and I know sharing our story is making a difference. I'm so thrilled to announce that I now have a new forum to help raise awareness of PSPD and the daily worries and lessons that comes a long with it.  I'm one of the new proud bloggers for  Infusing Love on the Hemophilia Federation of America web site - A blog dedicated to moms of children with bleeding disorders. In my first blog I speak about our initial diagnosis and the  Fear of the Unknown .  Please check it out and share it with others and take your part in helping spread awareness. Written by, Kari Peepe pspdaware@gmail....

My children mean the world to me. . . . and even though they drive me absolutely crazy, I wouldn't change anything about my life with them and everything we've gone through . . . . But. . . Since I'm writing these stories to share our trials and tribulations I will hold back nothing and be honest by saying I didn't have an instant bond with my second born Walker.  (Please reference previous blog. ... I'm sorry you shouldn't have more kids  for more details on Walkers traumatic birth.) I remember waking up out of post op thinking oh my gosh, I have a son  . . . . and I haven't even held him yet.  When I did finally hold him for the first time, it just felt kind of weird . . . . I remember thinking WoW, I just almost died . . . . and now I have this baby!  I remember my husband walking in with him grinning from ear to ear with HIS new son in his arms.  I felt like Walker had already lived so much of his life and I hadn't been a part of it. I was stil...