A Touch of Scarlett, our journey with a rare bleeding disorder

Today I was reminded of how fragile Scarlett really is and how my husband and I need to always be prepared with what steps to go through when she has an incident and what we should always have with us, if she does. What started off as a beautiful day at the park quickly escalated into a screaming child, a panicked mother and a whirlwind exit. . . . leaving onlookers wondering what the hell could've just happened. We were playing at the park with some friends of ours (who thankfully are aware of my daughters bleeding disorder), and everything seemed to be going as it should.  We had been playing for about 10 minutes, already with the usual reminders of being safe and going slow.  To anyone just watching, Scarlett came down the twisty slide like any other child would.  I was standing across the playground from her about 20 yards away when I saw her come down, bumping her chin ever so lightly on the edge of the slide as she came around a corner. . . The look however on her...

I'm naturally a guilt ridden person, and having a child with a bleeding disorder enhances this feeling ten fold.  I'm constantly questioning if what I just said to my daughter is going to emotionally scar her for life and if I'm being a good enough parent.   For as long as I can remember I've been a "people pleaser" and felt like I needed to be "perfect".   I actually get physically nauseated when I think I've done something to upset a loved one and will stress about it long after the event.  But after I had Scarlett and we were both diagnosed with Platelet Storage Pool Disorder , my guilty persona really came in to play.   The thing I find myself stressing about the most, .......... is time.   There simply aren't enough hours in the day to accomplish everything I want to accomplish.  And I'm always feeling horrible that my children are getting the short end of the stick. I'm constantly trying to balance giving each child the at...