I started my blog almost 1 year ago and I would be lying if I say it hasn't changed my life. The amount of people I've connected with and been able to share my stories with has given me a sense of belonging and purpose for the first time ever. I take pride in saying that I've opened the eyes of thousands of people to the rarely diagnosed Platelet Storage Pool Disorder and I know sharing our story is making a difference. I'm so thrilled to announce that I now have a new forum to help raise awareness of PSPD and the daily worries and lessons that comes a long with it. I'm one of the new proud bloggers for Infusing Love on the Hemophilia Federation of America web site - A blog dedicated to moms of children with bleeding disorders. In my first blog I speak about our initial diagnosis and the Fear of the Unknown . Please check it out and share it with others and take your part in helping spread awareness. Written by, Kari Peepe pspdaware@gmail....
We are here to share our story and spread awareness of this rare bleeding disorder called PLATELET STORAGE POOL DISORDER . . . . .