A Touch of Scarlett, our journey with a rare bleeding disorder

Since Scarlett and I were diagnosed with the rare bleeding disorder-Platelet Storage Pool Defect, I've made it my mission to share our story and spread awareness. Not only have I been working on my blog, but I've also been published on other web sites, foundations, etc. . . Here is a list to those links: I was recently interviewed for a piece in HFA Dateline 2015 Summer on why I became involved with the Hemophilia Federation of America An interview I did with HFA. . .  http://hemophiliafed.org/dateline/HFA_Dateline_2015_Q2_Summer/#p=26 I'm so honored to be a part of HFA 's INFUSING LOVE team. Here are the pieces I've written for them so far. . .                                                                                http://www.hemophiliafed.org/news-stories/2014/10/infus...

To say that Scarlett's Make-A-Wish trip to Give Kids the World made a lasting impression is an understatement. It has been almost 6 months since our amazing trip to Our Happy Place and I can honestly say, it is something that is still talked about in some capacity several times a week. Whether it's my 2 year old talking about riding on the carousel or Scarlett reminiscing about yet another favorite part of her trip. . . Our Wish trip has made an impact on us that will forever stay in our hearts. This week one of Scarlett's bleeder buddies is venturing out into the same experience. An indescribable week filled with magical memories that only Give Kids the World can provide. As soon as I told Scarlett that her pen pal was going to Disney World this week, she asked if she could go to the GKTW website. She wanted to watch all the videos and find the story I had written about our unforgettable experience. She then proceeded to write these. . A list of some things that her...

It's been two months since our Make-A-Wish trip and it's safe to say that our family still talks about all the fun we had and that it has made a lasting impression on all of us.  My daughter's room is filled with posters overflowing with pictures from her trip to Florida and her Wish Reveal party and memorabilia covers every surface of her room.  She will pack up her bag of pictures, brochures, stuffed animals, her trophy from Village Idol, and give a presentation about her trip to anyone who will listen. . .with her two year old brother chiming in whenever he can with statements like "Walker ride da chicken, on na carousal at da The Village." or "I saw a Mickey, at The Village." It's safe to say Make-A-Wish and Give Kids the World will remain in our hearts forever and thoughts from our trip still consume our minds. . . As my daughter and I were driving home from school the other day. . . She asked ... "Momma, when I grow up and have a daug...

Dear Make-A-Wish and Give Kids the World Village, My name is Kari Peepe and I am the lucky parent of Miss Scarlett Peepe. . . We just got back from Florida yesterday and we are literally beaming and my jaw hurts from smiling so much from watching my daughter in a state of such pure joy for one whole week. Scarlett Peepe was diagnosed when she was 3 years old with Platelet Storage Pool Disorder, a rare bleeding disorder which has left her with a life time of blood work, medications, restrictions and fears of life threatening situations.   Scarlett’s wish was to go to Disney World to see the parade, meet the princesses, and see the animals at Animal Kingdom.  As soon as Scarlett found out about Make-A-Wish, she was ecstatic but nothing could’ve prepared her or us for the experience that was about to take place and the joy it would leave in our hearts and our minds forever. The smile on her face that appeared on her wish reveal day has truly remained there ever since. ...