Since Scarlett and I were diagnosed with the rare bleeding disorder-Platelet Storage Pool Defect, I've made it my mission to share our story and spread awareness. Not only have I been working on my blog, but I've also been published on other web sites, foundations, etc. . .
Here is a list to those links:
http://www.hemophiliafed.org/news-stories/2014/09/infusing-love-grandparents-know-best-2/
http://www.hemophiliafed.org/news-stories/2014/07/infusing-love-fear-of-the-unknown/
http://www.hemophiliafed.org/news-stories/2015/08/infusing-love-her-own-protector/
http://www.hemophiliafed.org/news-stories/2015/05/infusing-love-physical-fundraising/
http://www.hemophiliafed.org/news-stories/2015/02/infusing-love-an-unexpected-haven/
http://www.hemaware.org/story/battling-bruises
http://www2.bleedfree.com/bleedfree-blog/i-am-pspd
http://www.gktw.org/blog/our-happy-place/
Here is a list to those links:
- I was recently interviewed for a piece in HFA Dateline 2015 Summer on why I became involved with the Hemophilia Federation of America An interview I did with HFA. . . http://hemophiliafed.org/dateline/HFA_Dateline_2015_Q2_Summer/#p=26
- I'm so honored to be a part of HFA's INFUSING LOVE team. Here are the pieces I've written for them so far. . . http://www.hemophiliafed.org/news-stories/2014/10/infusing-love-taking-care-of-the-patient-the-caregiver/
http://www.hemophiliafed.org/news-stories/2014/09/infusing-love-grandparents-know-best-2/
http://www.hemophiliafed.org/news-stories/2014/07/infusing-love-fear-of-the-unknown/
http://www.hemophiliafed.org/news-stories/2015/08/infusing-love-her-own-protector/
http://www.hemophiliafed.org/news-stories/2015/05/infusing-love-physical-fundraising/
http://www.hemophiliafed.org/news-stories/2015/02/infusing-love-an-unexpected-haven/
- I was interviewed for a piece in National Hemophilia Foundation's Hemaware . . .
http://www.hemaware.org/story/battling-bruises
- I was a featured blogger for BleedFree, Inc
http://www2.bleedfree.com/bleedfree-blog/i-am-pspd
- And of course our Wish Trip, inspired some pieces to be written for Make-A-Wish and Give Kids the World. . . http://sf.wish.org/wishes/wish-stories/copy-of-i-wish-to-go/scarlett-disney-world
http://www.gktw.org/blog/our-happy-place/
Written by,
Kari Peepe
Written by,
Kari Peepe
©KariPeepe/atouchofscarlett.blogspot.com
For more stories on my journey with defending our disorder and becoming our own advocates please check out:
- The Jackass Whisperer, Dealing with other people's judgements: http://atouchofscarlett.blogspot.com/2014/07/the-jackass-whisperer.html
- Help wanted!Seeking Dr who give a shit: http://atouchofscarlett.blogspot.com/2014/03/help-wanted-seeking-dr-who-gives-shit.html
- Defending our Disorder: http://atouchofscarlett.blogspot.com/2014/02/defending-our-disorder.html
- I am PSPD: http://atouchofscarlett.blogspot.com/2015/04/i-am-pspd.html
- Fear of the Unkown: http://atouchofscarlett.blogspot.com/2014/08/fear-of-unknown-my-1st-blog-for.html
For more stories on my journey with defending our disorder and becoming our own advocates please check out:
- The Jackass Whisperer, Dealing with other people's judgements: http://atouchofscarlett.blogspot.com/2014/07/the-jackass-whisperer.html
- Help wanted!Seeking Dr who give a shit: http://atouchofscarlett.blogspot.com/2014/03/help-wanted-seeking-dr-who-gives-shit.html
- Defending our Disorder: http://atouchofscarlett.blogspot.com/2014/02/defending-our-disorder.html
- I am PSPD: http://atouchofscarlett.blogspot.com/2015/04/i-am-pspd.html
- Fear of the Unkown: http://atouchofscarlett.blogspot.com/2014/08/fear-of-unknown-my-1st-blog-for.html
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