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My story......

So I guess I should start with my story.....

As a child I always felt like there was something wrong with me, but I wasn't diagnosed with a bleeding disorder until my 30's.  As any child being raised in the 80's, I endured many bumps, scrapes, bruises, and broken bones but mine took forever to heal and seemed to be there even when I didn't recall a particular event that could cause such an enormous bruise. Lots of questions where asked by family, neighbors, teachers, etc. but the Dr.s nor I never could draw any conclusions.

Fast forward, to my second pregnancy and my gynecologist (bless her soul) finally decided to take all my symptoms over 30 years seriously and sent me to Stanford to get tested! The results.....A very rare bleeding disorder-Platelet Storage Pool Disorder.

So, now I'm here in hopes to share my story and raise awareness of this rare bleeding disorder.  I am a wife and mother of two beautiful kids- my daughter also has PSPD and my son could be a carrier.  I've found several other families through out the world who also have Platelet Storage Pool Disorder, but most have another bleeding disorder as well.  I'm active in the social media world and am here for the long haul. . . I've got a million ideas and would love to share them and put them into action.  Please help share our story and help raise awareness of this rare disorder.

Written by,
Kari Peepe

©KariPeepe/atouchofscarlett.blogspot.com

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