Scarlett started showing signs of bruising as soon as she started crawling. Bumps lined her forehead and were spread across her body unlike any 1 yr old I'd seen.
Unfortunately due to my undiagnosed bleeding disorder at the time; I just summed it up to her having whatever I had.....which was a lot of unexplained bruises!
Then unfortunately social services got called and we decided it was time to step into action. Her pediatrician was one of the first people social services contacted, to which her doctor informed them of our concerns of her bruising the last few months and that we would continue looking into the problem. Social services dropped the case after talking to several people and doing a home visit to our already overly protected and padded home and concluded we were just a family with a bruising problem.....
This obviously scared me into being proactive and finding out was wrong with us. Due to my daughters young age, the doctors were originally waiting to do blood work because of how extensive the testing was, but it was obviously time to get her diagnosed!........finally, after months of traumatic blood draws and 2 hour trips to Oakland, she was finally diagnosed......Platelet Storage pool Disorder!
My daughter and I were officially diagnosed in 2011, and we are constantly telling our story and trying to spread the word, please do the same!
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| This is how Scarlett looked a lot the first few years of her life! Always covered in bruises all over her face and body! |
Written by,
Kari Peepe
©KariPeepe/atouchofscarlett.blogspot.com
For more stories about getting Scarlett tested, injuries and her health please check out:
- Like a Needle to my Heart: http://atouchofscarlett.blogspot.com/2013/09/like-needle-to-my-heart.html
- Scarlett bumps her her chin going down the slide: http://atouchofscarlett.blogspot.com/2014/01/not-just-another-day-at-park.html
- Birthday party, Play date, etc: http://atouchofscarlett.blogspot.com/2014/06/birthday-parties-play-dates-and.html
- Losing baby teeth: http://atouchofscarlett.blogspot.com/2014/06/bye-bye-baby-teeth.html
- Scarlett's little brother takes a bite: http://atouchofscarlett.blogspot.com/2014/02/no-no-bite.html
Written by,
Kari Peepe
©KariPeepe/atouchofscarlett.blogspot.com
- Like a Needle to my Heart: http://atouchofscarlett.blogspot.com/2013/09/like-needle-to-my-heart.html
- Scarlett bumps her her chin going down the slide: http://atouchofscarlett.blogspot.com/2014/01/not-just-another-day-at-park.html
- Birthday party, Play date, etc: http://atouchofscarlett.blogspot.com/2014/06/birthday-parties-play-dates-and.html
- Losing baby teeth: http://atouchofscarlett.blogspot.com/2014/06/bye-bye-baby-teeth.html
- Scarlett's little brother takes a bite: http://atouchofscarlett.blogspot.com/2014/02/no-no-bite.html
For more stories on raising children, when one of them has a bleeding disorder please check out:
- Raising Siblings, when one of them has a special disorder: http://atouchofscarlett.blogspot.com/2013/11/raising-siblings-when-one-of-them-has.html
- A Mother's Guilt: http://atouchofscarlett.blogspot.com/2013/12/a-mother-guilt.html
- It Takes a Village: http://atouchofscarlett.blogspot.com/2013/12/it-takes-village.html
- My little prince, (the non bleeder): http://atouchofscarlett.blogspot.com/2014/01/my-little-prince.html
- Family Fun Days-keeping the kids entertained safely: http://atouchofscarlett.blogspot.com/2014/02/family-fun-days.html
- My son bites Scarlett: http://atouchofscarlett.blogspot.com/2014/02/no-no-bite.html
- Another Day of Being Riddled w/Guilt: http://atouchofscarlett.blogspot.com/2014/04/another-day-of-being-riddled-with-guilt.html
- The What if's: http://atouchofscarlett.blogspot.com/2014/10/the-what-ifs-of-life-with-bleeding.html
- A local flood, fills us with fear: http://atouchofscarlett.blogspot.com/2014/12/flooded-with-fear.html
- Call me paranoid, but this is the parent I've become: http://atouchofscarlett.blogspot.com/2014/12/call-me-paranoid-but.html
- Scarlett learns to give back: http://atouchofscarlett.blogspot.com/2015/01/the-gift-of-giving.html
- Scarlett learns to advocate: http://atouchofscarlett.blogspot.com/2015/10/proudest-momma-on-blockmy-little.html
- Becoming her own protector: http://atouchofscarlett.blogspot.com/2015/10/infusing-loveher-own-protector.html
For more stories on raising children, when one of them has a bleeding disorder please check out:
- Raising Siblings, when one of them has a special disorder: http://atouchofscarlett.blogspot.com/2013/11/raising-siblings-when-one-of-them-has.html
- A Mother's Guilt: http://atouchofscarlett.blogspot.com/2013/12/a-mother-guilt.html
- It Takes a Village: http://atouchofscarlett.blogspot.com/2013/12/it-takes-village.html
- My little prince, (the non bleeder): http://atouchofscarlett.blogspot.com/2014/01/my-little-prince.html
- Family Fun Days-keeping the kids entertained safely: http://atouchofscarlett.blogspot.com/2014/02/family-fun-days.html
- My son bites Scarlett: http://atouchofscarlett.blogspot.com/2014/02/no-no-bite.html
- Another Day of Being Riddled w/Guilt: http://atouchofscarlett.blogspot.com/2014/04/another-day-of-being-riddled-with-guilt.html
- The What if's: http://atouchofscarlett.blogspot.com/2014/10/the-what-ifs-of-life-with-bleeding.html
- A local flood, fills us with fear: http://atouchofscarlett.blogspot.com/2014/12/flooded-with-fear.html
- Call me paranoid, but this is the parent I've become: http://atouchofscarlett.blogspot.com/2014/12/call-me-paranoid-but.html
- Scarlett learns to give back: http://atouchofscarlett.blogspot.com/2015/01/the-gift-of-giving.html
- Scarlett learns to advocate: http://atouchofscarlett.blogspot.com/2015/10/proudest-momma-on-blockmy-little.html
- Becoming her own protector: http://atouchofscarlett.blogspot.com/2015/10/infusing-loveher-own-protector.html
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