A Touch of Scarlett, our journey with a rare bleeding disorder

I recently returned from St.Louis, Missouri where I attended my first HFA Symposium. Our conference took place at the beautiful  Hyatt in St.Louis under the arch.   It was there, I was able to make connections with other bleeders by sharing our stories. My husband was lucky enough to be able to join me and we were blessed to enjoy a wonderful blend of learning, advocating, and networking all while enjoying a mini-vacation to somewhere we had never been. This years Symposium had a large focus on Blood Sisterhood, which is a portion of HFA,  I'm truly passionate about. The number of women bleeders in this community is only growing and I believe we are on the brink of even more being diagnosed. Women are taking a stand and demanding better resources for a faster and smoother diagnosis as well as a realistic treatment plan. I was going into the weekend excited to networks with others and get females in the community what we deserved as patients and care givers. ...