A Touch of Scarlett, our journey with a rare bleeding disorder

Hello, My name is Kari Peepe and in 2011 my daughter and I were diagnosed with a platelet storage pool disorder. After several years of researching and going online to find men sharing their stories about hemophilia, but never women talking about platelet disorders. . . I decided to start my own personal blog, A touch of Scarlett. This has become a place where I share stories about our life with a rare bleeding disorder, spread awareness and hopefully empower others to help me in the fight for a better treatment plan.  1- What is PSPD? PSPD is as autosomal inherited disorder (like Cystic Fibrosis) PSPD is a rare autosomal inherited bleeding disorder. Unlike hemophilia which is an x linked recessive bleeding disorder. Platelet disorders fall into 2 categories Qualitative (abnormal function and/or structure of the platelet) vs. Quantitative (from having too few or too many).We fall under the qualitative category. Platelets are small parts of the blood cells that hel...

This year I can truly say our family embraced the gift of giving. As many people know Scarlett became a wish kid last year and was given the biggest gift of all... To have her one wish come true. . .  to meet the princesses!! Ever since we returned from our trip to Disney World . . . I've made it my personal goal, to start giving back more and to instill that into my children. Scarlett turning her letters into Macys We have been dropping off letters for Macy's Believe campaign for a few years.  But this year we put a lot more effort into it and decided to get the schools involved. I work at a preschool where I was able to collect 30 letters to Santa, and I volunteered in Scarlett's class one day and taught them about Make-A-Wish and Macy's Believe Campaign, where we collected 22 more letters. Through out December Scarlett encouraged anyone she could, to write a letter to Santa, and on the day we turned them into Macy's . . .  she had over 75 letters.  I...