Skip to main content

Scarlett Makes A Wish PART 2

It's official. . . We got the call saying that Scarlett's Make a Wish to go to Disneyworld got granted and we will be staying at the GIVE KIDS THE WORLD VILLAGE.  We are flying out on Friday March 28 and will be returning the following Thursday.  Upon looking at their website I was brought to tears reading about all the amazing adventures that are in store for the family when we are in Orlando.  Scarlett's reminded of her bleeding disorder daily and is always feeling like it's affecting her life . . I hope this magical vacation gives her a time where she can just be a kid and not have to worry about anything else.
We are so excited but are going to try and keep it a secret from Scarlett until her Wish Reveal party in a few weeks. . . If you would like to see where we will be staying and read more about this amazing destination just for children with life threatening diseases . . Please visit
Written by,
Kari Peepe

©KariPeepe/atouchofscarlett.blogspot.com
http://atouchofscarlett.blogspot.com

For more on our Make-A-Wish trip and lasting impression please check out:

Comments

Popular posts from this blog

2020, you suck! Her introduction into womanhood wasn't supposed to look like this......

2020, what a year. It seems appropriate that Halloween weekend during the pandemic would end up being when my little girl become a woman.  Friday October 30, 2020 It started at 12:35 pm on a Friday. Halloween was the next day and my son's school was having a safe-distance trick-or-treating event that we'd been anxiously awaiting to attend. This would be the first time either of my kids were getting invited to come onto one of their campus' since the school year started. So, we were dressed in our Halloween outfits and ready for a fun filled day.  Keeping on her brave face as we rush out the door. We were rushing out the door, late as usual. Since the pandemic... we've definitely taken advantage of having a minimal schedule and being on time hasn't become our strong suit. Scarlett came running up to me whispering “ Mommy Mommy, when I wiped there was blood. ” I scurried her back to the bathroom to the assess the situation and assured her she’d be oK. " This was ...

PSPD 101- What is Platelet Storage Pool Disorder

Hello, My name is Kari Peepe and in 2011 my daughter and I were diagnosed with a platelet storage pool disorder. After several years of researching and going online to find men sharing their stories about hemophilia, but never women talking about platelet disorders. . . I decided to start my own personal blog, A touch of Scarlett. This has become a place where I share stories about our life with a rare bleeding disorder, spread awareness and hopefully empower others to help me in the fight for a better treatment plan.  1- What is PSPD? PSPD is as autosomal inherited disorder (like Cystic Fibrosis) PSPD is a rare autosomal inherited bleeding disorder. Unlike hemophilia which is an x linked recessive bleeding disorder. Platelet disorders fall into 2 categories Qualitative (abnormal function and/or structure of the platelet) vs. Quantitative (from having too few or too many).We fall under the qualitative category. Platelets are small parts of the blood cells that hel...

My story......

So I guess I should start with my story..... As a child I always felt like there was something wrong with me, but I wasn't diagnosed with a bleeding disorder until my 30's.  As any child being raised in the 80's, I endured many bumps, scrapes, bruises, and broken bones but mine took forever to heal and seemed to be there even when I didn't recall a particular event that could cause such an enormous bruise. Lots of questions where asked by family,  neighbors, teachers, etc. but the Dr.s nor I never could draw any conclusions. Fast forward, to my second pregnancy and my gynecologist (bless her soul) finally decided to take all my symptoms over 30 years seriously and sent me to Stanford to get tested! The results.....A very rare bleeding disorder-Platelet Storage Pool Disorder. So, now I'm here in hopes to share my story and raise awareness of this rare bleeding disorder.  I am a wife and mother of two beautiful kids- my daughter also has PSPD and my son could...