Dear HFNC's Family Camp attendees, I just wanted to say THANK YOU to all that helped take care of my princess this weekend. . . It was amazing to watch the community step up to give Scarlett the best camp experience while I was hauled up in the cabin taking care of her brother. I'm touched and forever grateful for all that you did. This weekend was the ever anticipated Hemophilia Foundation of N.California 's Annual Family Camp. My daughter and I attended last year for the first time and had a life changing experience. We had been looking forward to this years' ever since. Unfortunately, I'd be lying if I said the trip didn't start off on the wrong foot to begin with. Several days before we were supposed to be leaving, I was suffering though horrible pains and was questioning my own participation in the weekend. But I was ready to fight through it, in hopes of giving Walker the Family Camp experience he had been begging for, since his sister and I returned...
We are here to share our story and spread awareness of this rare bleeding disorder called PLATELET STORAGE POOL DISORDER . . . . .