A Touch of Scarlett, our journey with a rare bleeding disorder

Originally posted for HFA's Infusing Love blog at http://www.hemophiliafed.org/news-stories/2017/02/infusing-love-six-lessons-learned/   Infusing Love: Six Lessons Learned February 15, 2017 A lot has changed since my daughter was diagnosed with a platelet storage pool deficiency in 2011. Initially, there was little information and case studies to look to for reassurance. Not having a treatment plan led to many fears, doubts, and unknowns and wondering if I could make it through another injury or trip to the emergency room. I cursed the world for giving her a bleeding disorder. But thankfully over the last few years, diagnostic testing has become more accessible for patients and more information is available. Along with that, Scarlett has gotten older, the injuries are less frequent, and we are finally getting to experience what it’s like to drop your child off without waiting by the phone to find out something bad has happened. I’m able to see things a little clearer no...

  Female Factor is a large group of women centered around the The Hemophilia Foundation of Northern California bleeding disorder community that have come together to form an opportunity to provides outreach, leadership guidance, advocacy, networking, education and support to any and all women in the bleeding disorder community. The first event that took place in 2017 was our Soul Collage Workshop in Redding, Ca. Women 18 and up were invited to a weekend focused on Signs and Symptoms women with bleeding disorders have and participated in a collage project where we focused on cultivating our courage.         Taking a stroll at Turtle Bay Exploration Park in Redding,CA Courageous Heart Soul Collage Workshop