A Touch of Scarlett, our journey with a rare bleeding disorder

My daughter and I were both diagnosed with a rare storage pool disorder in 2012. She was four at the time and covered in bruises from learning how to navigate through life as most toddlers do. After a call to social services from a concerned citizen who saw bruises on a child (and her mother) and we decided it was time to get help and some answers. I'd been having signs of a bleeding disorder my entire life... nose bleeds, unexplained bruising, petechia, extreme bleeding during dental work all of which were always summed up to...."you're just an easy bleeder and bruiser". A year later, tons of Dr appointments and a half dozen tests and blood draws and we finally got a diagnosis. Platelet Storage Pool Disorder-a bleeding disorder that would keep my daughter from playing any contact sports, require her to be accompanied by an aide on the playground and have a life of restrictions.  Shortly after our diagnosis I started sharing our story in hopes of finding a treatme...