Every year children from the Hemophilia Foundation of Northern California (aged 7 and up) and other foundations are given the opportunity to attend Camp Hemotion. A camp just for those affected with a bleeding disorder. Making the choice to send Scarlett to a week long camp was an incredibly tough decision, but I'm so grateful I agreed to let her go, as I know the memories and independence she gained will last her a life time. Last year Scarlett wanted to attend but I didn't think she was ready and I know I wasn't. So we set our sights on this summer and Scarlett had been eagerly awaiting it's arrival ALL year long. I dropped her off on a Sunday. The bus picked her up in front of the Oakland Children's Hospital, which is about 2 hours away from my house. I remember the drive there that day, seemed to take forever. I think I had been in complete denial up to that point. I had been abnormally calm and walked into the situation thinking I was going to be fine....
We are here to share our story and spread awareness of this rare bleeding disorder called PLATELET STORAGE POOL DISORDER . . . . .