A Touch of Scarlett, our journey with a rare bleeding disorder

A piece I wrote for HFA 's Infusing Love . Originally wrote on February 18, 2015 http://www.hemophiliafed.org/news-stories/2015/02/infusing-love-an-unexpected-haven/ Infusing Love: An Unexpected Haven Categories:  Adult Women ,  Community Voices ,  Families ,  HFA News ,  Mom's Blog: Infusing Love February 18, 2015 I’d be lying if I said my nerves weren't through the roof upon entering the gates to the Taylor Family Foundation’s Camp Arroyo. To say that going to a family camp took me out of my element would be an understatement. I had no idea what I was getting myself into or what to expect. However, I was surprised. What I found was a group of people that made us feel welcomed, safe, loved, and most importantly heard. We were originally approached about going to a camp for hemophiliacs, at Hemophilia Foundation of Northern California’s holiday party. Upon hearing the suggestion, my first reaction was to say no. I have social anxiety and don'...

Since Scarlett and I were diagnosed with the rare bleeding disorder-Platelet Storage Pool Defect, I've made it my mission to share our story and spread awareness. Not only have I been working on my blog, but I've also been published on other web sites, foundations, etc. . . Here is a list to those links: I was recently interviewed for a piece in HFA Dateline 2015 Summer on why I became involved with the Hemophilia Federation of America An interview I did with HFA. . .  http://hemophiliafed.org/dateline/HFA_Dateline_2015_Q2_Summer/#p=26 I'm so honored to be a part of HFA 's INFUSING LOVE team. Here are the pieces I've written for them so far. . .                                                                                http://www.hemophiliafed.org/news-stories/2014/10/infus...