A Touch of Scarlett, our journey with a rare bleeding disorder

I'm a California girl and unfortunately was taught quickly that how I looked played an important role in where I stood on the social ladder. .  and going through adolescence with an undiagnosed bleeding disorder didn't make that any easier. Unexplained bruises covered my arms and legs. Bloody noses started for no rhyme or reason and countless other embarrassing bleeding episodes took place during my most impressionable years. All in a town where looks seemed to outweigh personality and character. Fast Forward to me now. A wife, teacher and mother of 2. I'm absolutely exhausted, working my butt off trying to balance being a present Mom, all while working enough to help get food on the table and the bills paid. And although I would like to say that my appearance is always on point. . .that would be a lie. I rarely have time or remember to put on make-up and do my hair, let alone moisturize, exercise, or go shopping for the latest trend. I must admit. . . I would LOVE to...

An interview I did with HFA. . . http://hemophiliafed.org/dateline/HFA_Dateline_2015_Q2_Summer/#p=26 For more stories on my journey with defending our disorder and becoming our own advocates please check out: The Jackass Whisperer, Dealing with other people's judgements:  http://atouchofscarlett.blogspot.com/2014/07/the-jackass-whisperer.html Help wanted!Seeking Dr who give a shit:  http://atouchofscarlett.blogspot.com/2014/03/help-wanted-seeking-dr-who-gives-shit.html Defending our Disorder:  http://atouchofscarlett.blogspot.com/2014/02/defending-our-disorder.html I am PSPD:  http://atouchofscarlett.blogspot.com/2015/04/i-am-pspd.html Interviews, Published pieces, etc: http://atouchofscarlett.blogspot.com/2015/02/my-voice-is-being-heard-interviews.html Fear of the Unkown:  http://atouchofscarlett.blogspot.com/2014/08/fear-of-unknown-my-1st-blog-for.html

As I was sitting at the computer the other day preparing for an upcoming interview I have about life with a rare bleeding disorder, Scarlett sat down beside me and started reading the questions. As she started to answer them back I felt compelled to write it down. . . . Her answers were too cute and insightful not to share and so I decided to include them on my blog. A few details about your life: Your age now, where you live, what you do, hobbies, etc.   My name is Scarlett and I am 7 yrs old. My favorite animal is a zebra. My favorite color is yellow. I make my Mom happy by giving her massages with my brother. When I was in class one day we were doing math and I did really good because I did every single one in a really fast amount of time. If I had a pet kitten I would feed it and comb it and I would do the same with my other pets too. My editor said you have a storage pool / platelet disorder — is that correct? What’s the name of the disorder? Please tell me a little bit...