Skip to main content

Scarletts place in the after school world

Originally posted on HFA's Infusing Love Blog . . . http://www.hemophiliafed.org/news-stories/2018/03/infusing-love-plenty-keep-busy/




When Scarlett got diagnosed with platelet storage pool disorder in 2011 the doctors told me she wouldn't bet able to play most sports. As she went from toddler hood to adolescence the restrictions seemed endless and it felt like she was never going to find any after school activities that she would enjoy. It was obvious we were going to have to steer away from the traditional soccer, T-ball, and gymnastics. And so we started seeking out sports that weren't contact sports and other activities that would keep her busy.

We started off putting her in Girl Scouts, which has proven to be a good decision. It' s a stress free environment where she can meet different kids in our town and she gets introduced to an array of different activities. They spend a lot of time gardening, doing Arts-N-Crafts and learning about taking care of themselves and others.

Scarlett got approved to play tennis last summer and it has become one of her favorite times of the year. She loves being out on the court slamming that ball and playing with the other kids. Her coach is super supportive and has put little restrictions on her which has been a big self esteem builder for her. Tennis has proven to be a great sport to get involved in.  She's been playing for almost 2 years and is growing with each session.

And now she's into theatre. Something I'm so grateful we've been able to help her pursue and can tell is her true calling. She joined a theatre group this Fall and was casted as Wendy in Peter Pan. It was obvious to everyone that this was where Scarlett belonged and where I'm sure she will remain for a long time.  She loves the dancing, singing and social element of being involved in performances and comes home from every practice just beaming with excitement.

SO I think it's safe to say, now that Scarlett has gotten older, she has finally found her nitch. And we could't be more proud of our little bleeder and how far she's come.  She's found several after school activities that give her the social outlet she's lacking from playing competitive sports. She's being active, competitive, and gaining confidence just like we hoped she would.

*Note: “Infusing Love: A Mom’s View,” is a blog collection of personal opinions and a representation of individuals experiences. While extensive efforts are made to ensure accuracy of the content, the blog entries do not represent HFA or its Board of Directors. The blog is also not intended to be construed as medical advice or the official opinion/position of HFA, its staff, or its Board of Directors. Readers are strongly encouraged to discuss their own medical treatment with their healthcare providers.

Comments

Popular posts from this blog

PSPD 101- What is Platelet Storage Pool Disorder

Hello, My name is Kari Peepe and in 2011 my daughter and I were diagnosed with a platelet storage pool disorder. After several years of researching and going online to find men sharing their stories about hemophilia, but never women talking about platelet disorders. . . I decided to start my own personal blog, A touch of Scarlett. This has become a place where I share stories about our life with a rare bleeding disorder, spread awareness and hopefully empower others to help me in the fight for a better treatment plan.  1- What is PSPD? PSPD is as autosomal inherited disorder (like Cystic Fibrosis) PSPD is a rare autosomal inherited bleeding disorder. Unlike hemophilia which is an x linked recessive bleeding disorder. Platelet disorders fall into 2 categories Qualitative (abnormal function and/or structure of the platelet) vs. Quantitative (from having too few or too many).We fall under the qualitative category. Platelets are small parts of the blood cells that hel...

2020, you suck! Her introduction into womanhood wasn't supposed to look like this......

2020, what a year. It seems appropriate that Halloween weekend during the pandemic would end up being when my little girl become a woman.  Friday October 30, 2020 It started at 12:35 pm on a Friday. Halloween was the next day and my son's school was having a safe-distance trick-or-treating event that we'd been anxiously awaiting to attend. This would be the first time either of my kids were getting invited to come onto one of their campus' since the school year started. So, we were dressed in our Halloween outfits and ready for a fun filled day.  Keeping on her brave face as we rush out the door. We were rushing out the door, late as usual. Since the pandemic... we've definitely taken advantage of having a minimal schedule and being on time hasn't become our strong suit. Scarlett came running up to me whispering “ Mommy Mommy, when I wiped there was blood. ” I scurried her back to the bathroom to the assess the situation and assured her she’d be oK. " This was ...

Give Kids the World Village. . .Go to your happy place-Scarlet's Make-A-Wish PART 5

When people say . . . "To go to your happy place". . .  I now have somewhere to go.   My name is Kari Peepe and I am the lucky parent of Miss Scarlett Peepe. . . We just got back from Give Kids the World in Florida and we are literally beaming and my jaw hurts from smiling so much from watching my daughter in a state of such pure joy for one whole week.   I want to cherish the feeling we had when we returned from Scarlett's Make-A-Wish trip . . .forever!  Scarlett was diagnosed when she was 3 years old with Platelet Storage Pool Disorder- a rare bleeding disorder which has left her with a life time of blood work, medications, restrictions and fears of life threatening situations.   As soon as Scarlett found out about Make-A-Wish, she was ecstatic but nothing could’ve prepared her or us for the experience that was about to take place and the joy it would leave in our hearts and our minds forever.   Prior to meeting Scarlett's Make-A-Wish team I had ne...