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Princess Jasmine is having a bleed . . .

I’m pleased to say it’s been months since I’ve blogged about Scarlett having an incident. What seemed to be never ending stories of fear and questioning whether I would survive having a daughter with a bleeding disorder have now transpired into minimal blogs filled with reminders of how far we've come. 

But this week we were reminded of why I started blogging in the first place....which was to share our story in hopes of getting some answers as to why our child was bleeding like they were and how to make it stop or prevent it from happening in the future. 

Scarlett’s been performing for a local theatre group for the last few years and this year was cast as Princess Jasmine in Aladdin. After months of memorizing lines, practicing dance moves and perfecting her voice .... it was finally opening night.

Scarlett made it through her first performance without skipping a beat. She sang beautifully, remembered all her lines and looked like she was in her glory. But I'd be lying if I said I didn't have this aching feeling something was wrong the whole performance. But after assuring me everything was fine at half time after telling her I noticed her playing with her mouth the whole performance. . . She went back on stage and finished the second half. 

It wasn’t until we got home late that night that Scarlett confessed what was really happening inside her mouth.  Shortly after we got home she came out of her room telling me there was something wrong with her mouth and that she thinks she’d been having a bleed. A common occurrence we go through anytime she's going through the process of losing a tooth. 

The sight I saw when she opened her mouth will haunt me for along time and I have no idea how she performed with that amount of blood attached to her tooth. We pulled a golf size clot out of her mouth and quickly went through our ritual of taking her meds when she's having a bleed. . . .amicar and stimate. She went to bed hopeless and upset that she wouldn't be able to perform her next show because she was bleeding or her meds made her feel too dizzy. I tried to encourage her to think positive and we'd see how she felt in the morning.

The next morning I woke up to what sounded like a stampede coming down the hallway and Scarlett coming at me with a look of panic in her eyes that I'd never seen before. As she got closer I noticed she wasn't opening her mouth and it looked like crusted blood was covering her lips. I instantly grabbed a wet paper towel and started wiping it on her mouth that was literally glued shut with blood, It was something I'd never seen before.Once I finally got her the blood off her lips I found yet another golf size clot attached to her loose tooth. As I pulled out the clot I saw her eyes roll back in her head and I caught her as she fell to the ground.

After a trip to the dr to get her levels checked, we came to the conclusion that she fainted from the fear of what was going on. We went home and she rested while fretting about whether or not she could perform in her 2nd performance. . . and by lunchtime she decided the show must go on. She performed through her 2nd show dehydrated and worried she'd have another bleed but you wouldn't know it by the look on her face. She smiled through the whole thing and nobody knew any different. 

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