A Touch of Scarlett, our journey with a rare bleeding disorder

I’m pleased to say it’s been months since I’ve blogged about Scarlett having an incident. What seemed to be never ending stories of fear and questioning whether I would survive having a daughter with a bleeding disorder have now transpired into minimal blogs filled with reminders of how far we've come.  But this week we were reminded of why I started blogging in the first place....which was to share our story in hopes of getting some answers as to why our child was bleeding like they were and how to make it stop or prevent it from happening in the future.  Scarlett’s been performing for a local theatre group for the last few years and this year was cast as Princess Jasmine in Aladdin. After months of memorizing lines, practicing dance moves and perfecting her voice .... it was finally opening night. Scarlett made it through her first performance without skipping a beat. She sang beautifully, remembered all her lines and looked like she was in her glory. But I'd b...

Female Factor comes to my neck of the woods.  Female Factor Ladies

Every year I'm astonished of the support we get from friends and family willing to give up a weekend  to come and support our walk each year . . . and this year was no exception.  We had family, newbies, family friends, a couple that have joined us for every walk we've participated in, and even Scarlett's teacher. I'm forever grateful for everyone's love and support. I was so proud of the kids for tracking through with no complaints and loved catching up with everyone. We all loved taking a stroll around the beautiful Lake Merrit all while supporting a cause we hold so close to our heart. An amazing day and one I know will stand out amongst the rest. I walked away feeling all the warm and fuzzies and I know Scarlett did too.  It didn't hurt to have all those friendly faces in the audience as I ventured through my first time being co-chair for the walk either.  I took a lot of pride in the walk this year and had given up a lot of my free time to make ...

Originally posted on HFA's Infusing Love Blog . . . http://www.hemophiliafed.org/news-stories/2018/03/infusing-love-plenty-keep-busy/ When Scarlett got diagnosed with platelet storage pool disorder in 2011 the doctors told me she wouldn't bet able to play most sports. As she went from toddler hood to adolescence the restrictions seemed endless and it felt like she was never going to find any after school activities that she would enjoy. It was obvious we were going to have to steer away from the traditional soccer, T-ball, and gymnastics. And so we started seeking out sports that weren't contact sports and other activities that would keep her busy. We started off putting her in Girl Scouts, which has proven to be a good decision. It' s a stress free environment where she can meet different kids in our town and she gets introduced to an array of different activities. They spend a lot of time gardening, doing Arts-N-Crafts and learning about taking care of themsel...