I was recently given the opportunity to attend an event where we spoke about intimacy issues amongst some females from the bleeding disorder community. Subjects most don't feel comfortable sharing or may feel embarrassed to talk about, were thrown out for discussion and I was amazed to hear how honest and candid the females were willing to be. We enjoyed a nice lunch in the city while discussing roadblocks we may have found along the way where intimacy is concerned and it was all followed by a scavenger hunt around San Francisco. Yet another fun filed day with my Female Factory crew.
Hello, My name is Kari Peepe and in 2011 my daughter and I were diagnosed with a platelet storage pool disorder. After several years of researching and going online to find men sharing their stories about hemophilia, but never women talking about platelet disorders. . . I decided to start my own personal blog, A touch of Scarlett. This has become a place where I share stories about our life with a rare bleeding disorder, spread awareness and hopefully empower others to help me in the fight for a better treatment plan. 1- What is PSPD? PSPD is as autosomal inherited disorder (like Cystic Fibrosis) PSPD is a rare autosomal inherited bleeding disorder. Unlike hemophilia which is an x linked recessive bleeding disorder. Platelet disorders fall into 2 categories Qualitative (abnormal function and/or structure of the platelet) vs. Quantitative (from having too few or too many).We fall under the qualitative category. Platelets are small parts of the blood cells that hel...
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